Julie Brown – In the Woods

Not all the features of atypical human operating systems are bugs. By autistic standards, the “normal” brain is easily distractible, is obsessively social, and suffers from a deficit of attention to detail and routine. Thus people on the spectrum experience the neurotypical world as relentlessly unpredictable and chaotic, perpetually turned up too loud, and full of people who have little respect for personal space.
~ Steve Silberman
(NeuroTribes: The Legacy of Autism & The Future of Neurodiversity)

A major source of anxiety for me is any sudden change of plans. Over the years I’ve learned from observation that other people don’t see these as the catastrophes I experience and have at times concluded that there is something terribly wrong with me. Or then I think something is wrong with others, that they’re rude not to stick to a plan. I’ve spent countless hours giving myself pep talks about learning to be flexible and learning to go with the flow. When a change of plans pops into my day I have a hard time telling if it is a reasonable response to an unanticipated development or if it is just someone else’s whim. It doesn’t matter. Either way, I force myself to accept the change and exhaust myself repressing the panic I feel, trying to be “normal.”

[Lewis] Carroll’s transitions from chapter to chapter are abrupt and unexpected. Alice is rushed from one scene to the next without any opportunity to stop and process what she has just experienced, or to prepare herself mentally for what’s to come. This kind of abrupt time change, without transition, is similar to how a day at school feels to a child with AS. There is no flashback, no foreshadowing: since there is only the immediate moment, shifts in time and place are disconcerting and stressful. Carroll captures this feeling of urgency and panic very well.
~ Julie Brown
(Writers on the Spectrum: How Autism & Asperger’s Syndrome Have Influenced Literary Writing)

“Alice Meets the White Rabbit” by Margaret Winifred Tarrant

I have a very poor sense of time and an “unreasonable” fear of being late. When I know I have an appointment I rush around checking the clock all day, much like the White Rabbit in Alice in Wonderland, and cannot manage to do anything else. It seems like such a waste of time, but I cannot help it. Inevitably I leave the house too early. I watch in wonder and awe as others effortlessly multi-task and juggle appointments and chores in the course of a day. But to me it’s too overwhelming and confusing!

When surprised by the doorbell or the phone ringing I experience an adrenaline rush. I’ve worked hard over the years to not startle or gasp when that happens. Similarly, it is difficult to keep myself together when hearing a horn or a siren while out driving. On the other hand, I love the soothing sounds of foghorns and buoy bells, one of the comforts of living by the sea.

It’s interesting to me that I accept other sorts of change with far more grace, the change of seasons, the stages of life, evolution, or lifestyle changes. Knowing that nothing stays the same or lasts forever makes it easy for me to do things like let go of clutter or keepsakes and accept that children grow up and move away. Perhaps because these changes are more predictable and expected.

“Dear Bird” by William-Adolphe Bouguereau

Got to keep it together when your friends come by
Always checking the weather but they want to know why
Even birds of a feather find it hard to fly
~ Aimee Mann
♫ (Goose Snow Cone) ♫

Today is the 26th anniversary of my mother’s death. The pain of loss has dulled somewhat over the years, but this year is a little different because my mom was 59 when she died and I am now 60. It just feels a little unsettling… One thing I still miss terribly is calling her and telling her what was new in my life and what her grandchildren were up to. She would have found this autism thing very interesting.

When I was in nursery school my behavior was different enough to prompt my parents to take me to a child psychologist for evaluation. Autism was not understood or even heard of in the 1960s. The psychologist told them I needed more attention from them. A few years later, when I got a stomach ulcer in elementary school the doctor told them I needed more emotional support from them. How I wish I could tell them now it was not their parenting that was the problem!

Currently I am reading a wonderful book, Writers on the Spectrum: How Autism & Asperger Syndrome Have Influenced Literary Writing by Julie Brown. It’s no secret that Emily Dickinson is my favorite poet and my jaw dropped to learn that she probably had autism and one whole chapter in this book is devoted to her. I found it interesting to learn how autism made so many of her poems indecipherable, although they no doubt made perfect sense to her.

The recurring practice of quoting from someone else’s literature in your own text resembles the echolalia that people with autism are known for. Some repeat words from movies, television, or other people because they are trying to understand the meaning of the words. Sometimes echolalia is an attempt to communicate with others — the words are tools borrowed to build meaning. Some repeat phrases for the sheer joy of it.
~ Julie Brown
(Writers on the Spectrum: How Autism & Asperger Syndrome Have Influenced Literary Writing)

A couple of things struck me in the above paragraph. My autism may be what drives me to collect and share quotations! I’m not sure I completely understand the definition of “echolalia” but my mother did tell me something that I think may be related. She could always tell when I made a new friend at school because I would come home with a different accent and different mannerisms, evidently copied from various classmates. It still happens to me when I spend a lot of time with someone, although I try not to do this.

So many things are making more sense these days…