time is not even a thing

9.22.19 ~ timeworn hardware at Mystic Seaport

And this means that time is a mystery, and not even a thing, and no one has ever solved the puzzle of what time is, exactly. And so, if you get lost in time it is like being lost in a desert, except that you can’t see the desert because it is not a thing.And this is why I like timetables, because they make sure you don’t get lost in time.
~ Mark Haddon
(The Curious Incident of the Dog in the Night-Time)

For me, this might be why I like (need?) clocks. Getting lost in time for me is more like being lost at sea. (I’ve sailed across the ocean but I’ve never seen a desert.)

I hadn’t thought much about it before I read this book, but I have a clock in every room of my house. Clocks were one of the few moorings I had at school when I was growing up. The bell always rang at the right time. A difficult class could only last until the appointed time. Thinking about all this also brought up a fond memory.

Many years ago, long before I knew anything about autism, and long before there were cell phones, we were visiting Tim’s aunt and subconsciously I was looking, one room after another, for a clock, feeling very anxious. At some point it sunk in that I wasn’t going to find one and before I could check my tongue I blurted out, “you don’t have any clocks!”

Tim’s aunt said she guessed that was true, and a few minutes later she kindly brought me a watch to keep with me for the day. That’s one thing I love about her, she accepts my quirks and does what she can to make me feel welcome and comfortable anyway. ♡

It was almost three years ago when I found out that I was on the autism spectrum and thought that I would blog about it a lot more than I have. That doesn’t mean I haven’t been observing my interactions with the neurotypical world and sorting through memories with new understanding. It’s been a journey of discovery, fascinating but difficult to articulate, probably because of my brain thinking mostly in pictures.

I prefer analog clocks to digital ones. When I see the numbers on a digital clock my brain translates them to the clock pictured in my mind. And it takes a bit of time.

I enjoyed The Curious Incident of the Dog in the Night-Time, a mystery novel written from the viewpoint of a teenage boy with autism. The author doesn’t have autism so it’s amazing that he can describe the train of thoughts running through the brain of an autistic person. I read the book in one day! It was so easy to picture everything he was talking about.

I dislike feeling unmoored and lost in time, simply because there is no clock around to anchor me. But then I remember, our brains are as mysterious as time, and oftentimes anxiety happens.

Being awake. Resting in the happening of this moment, exactly as it is. Relaxing the need to understand or to make things different than they are. Opening the heart. Just this — right here, right now.
~ Joan Tollifson
(Resting in the Happening of this Moment)

do not disturb

On our next visit to the beach we sat in our usual spot to enjoy some supper and noticed that my gull friend wasn’t around. Instead we had two large juvenile great black-backed gulls (above and below) pacing back and forth in front of us, probably hoping for a handout. Eventually they will learn that these two humans never feed gulls! Perhaps they were the offspring of the gull bothering my herring gull during our previous visit?

Anyhow, after we ate we took a little walk. Tim spotted my gull friend first, sitting way out on a section of rocks where we are not allowed to climb. I called out a greeting but he seemed determined to ignore me. He turned his head a couple of times, but didn’t respond. And so parts of a Van Morrison song came to mind…

Other times you just can’t reach me
Seems like I’ve got a heart of stone
Guess I need my solitude
And I have to make it on my own

Well I guess I’m going A.W.O.L.
Disconnect my telephone
Just like Greta Garbo
I want to be alone

Too long to decode all the secrets
Have to get some elbow room
Most people think that everything
Is just what they assume

Well I know I’m going A.W.O.L.
Tell everyone I’m not at home
Just like Greta Garbo
I just want to be alone

~ Van Morrison
♫ (Just Like Greta) ♫

Having a very strong need for “alone” time myself I gave him his space and let him be.

a secret garden

“A secret garden. Made by Barbara Lyn (sic) Chomiak. Seven year old.”

One of the strange things about living in the world is that it is only now and then one is quite sure one is going to live forever and ever and ever. One knows it sometimes when one gets up at the tender solemn dawn-time and goes out and stands alone and throws one’s head far back and looks up and up and watches the pale sky slowly changing and flushing and marvelous unknown things happening until the East almost makes one cry out and one’s heart stands still at the strange unchanging majesty of the rising of the sun — which has been happening every morning for thousands and thousands and thousands of years. One knows it then for a moment or so. And one knows it sometimes when one stands by oneself in a wood at sunset and the mysterious deep gold stillness slanting through and under the branches seems to be saying slowly again and again something one cannot quite hear, however much one tries. Then sometimes the immense quiet of the dark blue at night with millions of stars waiting and watching makes one sure; and sometimes a sound of far-off music makes it true; and sometimes a look in some one’s eyes.
~ Frances Hodgson Burnett
(The Secret Garden)

I’m still poking around through my childhood papers and drawings. My mother was the true bookworm in our family. So many images coming back to me now, like my parents in the evening, my mother with her nose in the newspaper and my father watching television.

At bedtime, my mother read to us, even after we were old enough to read for ourselves. One of my favorite books was The Secret Garden by Frances Hodgson Burnett. (Apparently I loved it so much I illustrated my own version of a secret garden.) And often my father would start playing the piano, gentle Bach lullabies sending us off to sleep.

Spring is in the air! Time to pick up the pace and plow through some more boxes. Onward!

on the year’s shortest day

"Peasant Interior in Winter" by Carl Larsson (1853-1919) Swedish Painter & Interior Designer
“Peasant Interior in Winter” by Carl Larsson

A sly gift it is, that on the year’s
shortest day, the sun
stays longest in this house —

extends the wand of its slow
slant and distant squint
farthest into the long depths

of our wintry rooms — to touch, with
tremulous light, interior places
it has not lit before.

~ Robyn Sarah
(Solstice)

transcendence

11.15.18 ~ Chapel Hill, North Carolina
after the hard freeze and four days of rain

Standing on the bare ground, — my head bathed by the blithe air, and uplifted into infinite space, — all mean egotism vanishes. I become a transparent eye-ball; I am nothing; I see all; the currents of the Universal Being circulate through me; I am part or particle of God.
~ Ralph Waldo Emerson
(Nature)

Finn

Finn

Little grandson Finn has been home for a few days now and we are all very busy! His name is Irish, given to him as a nod to his family’s year in Ireland, where he was conceived.

Finn McCool (Fionn mac Cumhaill) was a legendary Irish giant who fought the Scottish giant Benandonner, who was threatening Ireland. Larisa, Dima and Katherine visited the Giant’s Causeway while they were in Ireland.

A blessing for a brother written by John O’Donohue:

The knowing that binds us
Is older than the apostrophe of cell
We formed from within the one womb.

All that flowed into us there
From the red village of ancestry
Sowed spores of continuity
That would one day flower
Into flickers of resemblance:

An unconscious gesture
Could echo an ancestor,
And the look of us stir
Recognition of belonging
That is ours alone;

And our difference finding
Its own rhythm of strangeness,
Leading us deeper into a self
That would always know its own
Regardless of difficulty and distance;
And through hurt no other could inflict;

Still somehow beside each other
Though the night is dark
With wind that loves
To clean the bones of ruins,
Making further room for light.

~ John O’Donohue
(To Bless the Space Between Us)

late spring in the woods

6.6.18 ~ wild geranium, Connecticut College Arboretum
New London, Connecticut

The wood is decked in light green leaf.
The swallow twitters in delight.
The lonely vine sheds joyous tears
Of interwoven dew and light.

Spring weaves a gown of green to clad
The mountain height and wide-spread field.
O when wilt thou, my native land,
In all thy glory stand revealed?

~ Ilia Chavchavadze
(Anthology of Georgian Poetry)

wild geranium

“Summer is coming!” the soft breezes whisper;
“Summer is coming!” the glad birdies sing.
Summer is coming — I hear her quick footsteps;
Take your last look at the beautiful Spring.
~ Dora Read Goodale
(Summer Is Coming)

6.6.18
6.6.18

To be interested in the changing seasons is a happier state of mind than to be hopelessly in love with spring.
~ George Santayana
(Words of Wisdom & Quotable Quotes)

notice the ant in the middle of the flower
new growth on a hemlock
female common whitetail dragonfly

How many Flowers fail in Wood —
Or perish from the Hill —
Without the privilege to know
That they are Beautiful —

How many cast a nameless Pod
Opon the nearest Breeze —
Unconscious of the Scarlet Freight —
It bear to other eyes —

~ Emily Dickinson
(The Poems of Emily Dickinson, #534)

6.6.18
sweet little bluets
azalea
inviting path

Honor the space between no longer and not yet.
~ Nancy Levin
(Grief Interrupted: A Holistic Guide to Reclaiming Your Joy)

Janet overlooking the lawn where the audience sits
to watch outdoor theater in the summer
fringe tree blossoms
more fringe tree blossoms
and still more fringe tree blossoms

persistently, abundantly, miraculously

1.22.18 ~ Cork, Ireland
Katherine has been taking good care of her beloved Purple Penguin ♡
photo by Larisa

One morning you might wake up
to realize that the knot in your stomach
had loosened itself and slipped away,
and that the pit of unfilled longing in your heart
had gradually, and without your really noticing,
been filled in — patched like a pothole, not quite
the same as it was, but good enough.

And in that moment it might occur to you
that your life, though not the way
you planned it, and maybe not even entirely
the way you wanted it, is nonetheless —
persistently, abundantly, miraculously —
exactly what it is.

~ Lynn Ungar
(The Way It Is)

After recovering from surgery and the bad cold I then had about a week of feeling good. I couldn’t wait to get back to my chores and even happily spent a morning giving the bathroom a thorough cleaning. It was fun to go food shopping with Tim, run errands together, cook a few meals, do some laundry, and enjoy a lovely long walk on the beach.

Then Wednesday I had my first radiation treatment and it went very well. But the predicted side effect of fatigue hit the next morning and I wound up sleeping most of the day. If that is the only side effect, though, I am grateful. I still feel sapped. Being a morning person usually full of vim, vigor and vitality, I woke up this morning wondering why on earth I felt so sluggish and it took me an hour or so to figure out that it must be lingering fatigue from the treatment. (And why was I looking for the eggs in the dishwasher?)

So Tim volunteered to do some food shopping today. And I am going to make a packing list!

Tim and the kids planned visits to fill the two week period between my 2nd and 3rd treatments! I will be getting my 2nd treatment (at Smilow Cancer Hospital in New Haven) on Wednesday and then going straight to Providence to catch a flight to Ireland to see Larisa & Dima and Katherine!!! And then the next week we will go to Georgia to see Nate & Shea!!! We will arrive home the night before my 3rd and final treatment.

I may be a tired blob but at least these trips will help pass the time and my radiation oncologist thinks they are a great idea. I do hope I get to see Blarney Castle and more of Cumberland Island National Seashore. But whatever happens it will be wonderful seeing the kids again. ♡