old enough to die

“Old Woman with Child & Goose” by Willard Metcalf

Once I realized I was old enough to die, I decided that I was also old enough not to incur any more suffering, annoyance, or boredom in the pursuit of a longer life. I eat well, meaning I choose foods that taste good and that will stave off hunger for as long as possible, like protein, fiber, and fats. I exercise — not because it will make me live longer but because it feels good when I do. As for medical care: I will seek help for an urgent problem, but I am no longer interested in looking for problems that remain undetectable to me. Ideally, the determination of when one is old enough to die should be a personal decision, based on a judgment of the likely benefits, if any, of medical care and — just as important at a certain age — how we choose to spend the time that remains to us.In giving up on preventative care, I’m just taking this line of thinking a step further: Not only do I reject the torment of a medicalized death, but I refuse to accept a medicalized life, and my determination only deepens with age. As the time that remains to me shrinks, each month and day becomes too precious to spend in windowless waiting rooms and under the cold scrutiny of machines. Being old enough to die is an achievement, not a defeat, and the freedom it brings is worth celebrating.
~ Barbara Ehrenreich
(Natural Causes: An Epidemic of Wellness, the Certainty of Dying, and Killing Ourselves to Live Longer)

A year after my cancer surgery it seems like a good time to mention a book that tumbled into my life at just the right moment. After my brush with a life-threatening illness, the ideas set forth in Barbara Ehrenreich’s book, Natural Causes, make a whole lot of sense to me.

I spent many years carting my mother-in-law, my aunt and my father around to those “windowless waiting rooms,” getting test after test, some of them downright painful. My aunt finally put her foot down and proclaimed, “Whatever I’ve got, I’m taking it with me.”

She lived to be 103 in spite of refusing all the standard tests recommended for her in the last years of her life. When she died, it was from an infection. After accepting treatment for a day or two, she finally refused treatment for that, too.

Nothing ever came of those countless tests.

In my own case, because my mother died of breast cancer, I have submitted to many “required” mammograms and wound up with three false positives, causing weeks of anxiety. Now I refused to have any more. At this point in my life I am old enough to die, and if I wake up one morning and feel a lump in my breast, so be it.

The endometrial cancer I wound up getting? Well, there is no screening for it. Irony.

Fortunately I’ve found a general practitioner who understands my feelings and treats my “urgent problems” without pushing me into a “medicalized life.” Barbara Ehrenreich’s book has all the facts and figures I needed to convince me that as a culture, we are indeed killing ourselves, or at least making ourselves miserable, in order to live longer. All these expensive, invasive tests have not increased our lifespans.

Therefore, I have chosen to enjoy spending whatever time I have left to me without borrowing trouble.

green space

“The Younger Brother” by William-Adolphe Bouguereau

Teach the children. We don’t matter so much, but the children do. Show them daisies and the pale hepatica. Teach them the taste of sassafras and wintergreen. The lives of the blue sailors, mallow, sunbursts, the moccasin flowers. And the frisky ones — inkberry, lamb’s-quarters, blueberries. And the aromatic ones — rosemary, oregano. Give them peppermint to put in their pockets as they go to school. Give them the fields and the woods and the possibility of the world salvaged as they learn to love this green space they live in, its sticks and leaves and then the silent, beautiful blossoms.
~ Mary Oliver
(Upstream: Selected Essays)

morning light

10.22.18 ~ morning light ~ Chapel Hill, North Carolina

As a scientist I am indeed only an ant, insufficient and anonymous, but I am stronger than I look and part of something that is much bigger than I am. Together we are building something that will fill our grandchildren’s grandchildren with awe, and while building we consult daily the crude instructions provided by our grandfathers’ grandfathers. As a tiny, living part of the scientific collective, I’ve sat alone countless nights in the dark, burning my metal candle and watching a foreign world with an aching heart. Like anyone else who harbors precious secrets wrought from years of searching, I have longed for someone to tell.
~ Hope Jahren
(Lab Girl)

Reading Lab Girl by Hope Jahren was eye-opening for me. My father was a scientist and, like many children, I didn’t have much of a grasp on what he did all day. I knew he was researching chicken viruses in a lab at the university. Sometimes he would take my sister and me to work and I noticed all sorts of lab equipment, especially a special light he used to examine chicken embryos in their shells. I knew every couple of years he would be stressing about whether he would get funding for another couple of years. (He always did.) Once I tried to read his PhD thesis, but it was like trying to read a foreign language.

In this book Jahren, who studies plants, introduced me to the concept of curiosity-driven research. The scientist sets up and runs experiments to investigate whatever she happens to be wondering about. Any “real-world” applications of the results are not immediately apparent or sought. Collecting data is pure joy for her. She adds to the volume of scientific knowledge and leaves information for future scientists to make use of in their own research.

Now I get what my father was doing all those years! He may not have made any dazzling discoveries but he was an important ‘part of something that is much bigger than he was.’ Hope Jahren gives a very enlightening look into the everyday world of scientists, in words all of us will understand.

learning is spiral

8.21.18 ~ garden flowers from our local farmers market

For many, learning is spiral, where important themes are visited again and again throughout life, each time at a deeper, more penetrating level.
~ Jerold W. Aps
(Teaching from the Heart)

For much of this summer I’ve been down in the dumps, cursing the oppressive humidity and climate change. After reading my complaining post on August 9, my kind neighbor invited me out to happy hour at Harbour House Restaurant & Bar in Mystic. I was apprehensive because bars often terrify me ~ too much noise and too many people. But I decided to go and give it a try.

We went at 3:30, before the crowds, and chose to sit outside on the deck, under the dappled shade of a gorgeous birch tree. The restaurant sits high on a hill overlooking “the best ocean view in Mystic.” There was a lovely sea breeze which made the humidity surprisingly bearable. I had a frozen lemonade and some chicken wings and celery. Delicious! It really hit the spot.

And then we were treated to a breathtaking sight. An eagle flew directly overhead with a large fish in his talons. We had a nice conversation with the young couple at the next table. I’m so glad I went ~ thank you, Susan! It was an afternoon I won’t soon forget. Sometimes the squeaky wheel does get the grease.

For me, learning is a spiral. Last summer I decided that leaving any one kind of food out of one’s diet was too extreme. After a year of eating meat, grains and legumes — everything and anything gluten-free — I was getting terrible stomach aches more and more often. Finally one night I had one that lasted for twelve hours, after a meal of gluten-free pasta, beans, goat cheese and veggies. My body was trying to tell me something. I decided to pay attention.

Over the years I’ve tried most of the diets from paleo to vegan and the one that made me feel the best was paleo. So, in the middle of July, after another flurry of research, I decided to listen to my body and go back to the paleo, eliminating beans and grains, even gluten-free grains. An “important theme” that I needed to “visit again.” It’s been about a month and I am feeling better. No more heartburn. My stomach has settled down and one of the things I remembered from the last time eating paleo has returned: I can go much longer between meals without my blood sugar dropping.

Now that Tim is retired it’s been fun trying new recipes with him, going to farmers markets and shopping together. We’re eating lots more vegetables. Tonight I went 5 hours between lunch and supper, and felt hungry but not desperate. What a blessing!

It turns out Larisa & Dima and Katherine will be moving back to North Carolina in September, which means we won’t be going to Ireland for the arrival of our new grandson. Our frequent trips to North Carolina will begin again. 🙂

take time by the forelock

2.2.18 ~ Fota Wildlife Park, Carrigtwohill, Cork, Ireland ~ lion

A wise man will know what game to play to-day, and play it. We must not be governed by rigid rules, as by an almanac, but let the season rule us. The moods and thoughts of man are revolving just as steadily and incessantly as nature’s. Nothing must be postponed. Take time by the forelock. Now or never! You must live in the present, launch yourself on every wave, find your eternity in each moment.
~ Henry David Thoreau
(Journal, April 23, 1859)

Thoreau wrote these words when he was only 41 years old. (He died at age 44.) When I was 41… Let’s just say that after a childhood of ‘finding my eternity in each moment’ I found a way to squelch that way of being until I was into my 40s. But ‘living in the present’ has been coming much more naturally to me in the past twenty years. It’s a blessing to be alive.

This summer has been unbearably hazy, hot and humid. So many heat advisories and air quality alerts. I cannot remember the last time we turned off the air conditioners and opened the windows. I am crazy with cabin fever and going outside offers no relief.

But, I had some good news yesterday. I had an appointment with my oncologist and he found no sign of cancer recurrence! So I don’t need to see him again for a whole year!

Come, autumn. Please! Time to curl up again with a good book. To ‘launch myself on a new wave.’

comfort

7.13.18 ~ Groton, Connecticut

Sometimes I think it must have been much easier to live and die at the time of our ancestors, the Vikings. When they buried their relatives, they also buried many objects together with the body. This was to be sure that the dead would not miss anything in their new environment. It also an assurance for the family members who remained that they would not become obsessed with spirits of the dead and constantly be reminded of them because their possessions were still scattered all over the tent or mud hut. Very clever.
~ Margareta Magnusson
(The Gentle Art of Swedish Death Cleaning: How to Free Yourself & Your Family from a Lifetime of Clutter)

7.13.18 ~ Eastern Point
my camera decided to go Impressionistic for this distant cormorant

You might guess from my recent choice of reading material that I’m still struggling with the objects and possessions I inherited from our ancestors. Things started piling up around 2008. Hard to believe it’s been 10 years! I have managed to dispose of a lot of stuff but cannot rest on my laurels. What’s left is stacked halfway to the ceiling in a corner of what is supposed to be the genealogy/guest room. The corner takes up almost half the room.

there are three cormorants in this picture,
which I didn’t realize until I saw the picture enlarged on the laptop

Trouble is, life (births, illnesses, travels, weddings, visitors, deaths) keeps happening and I need a good chunk of uninterrupted time to roll up my sleeves and dig in. Now that there is a lull in the stream of summer activities I am annoyed by the droning of the air conditioners. But I since learning about the autism I am aware now that I am much more sensitive to noise than neurotypical people, so, I will wait patiently for some cool, dry, quiet weather to return.


7.12.18 ~ Grandmother Elm ~ Stonington, Connecticut

We enjoy going to estate sales. We rarely buy anything but a few days ago we found a large file cabinet in excellent shape at a great price. It is now in the genealogy/guest room waiting for me to make use of it. After my grandmother died my grandfather offered us anything we wanted in the house. I chose my grandmother’s mahogany secretary which I still have and treasure. Grandfather said he didn’t want us grandchildren to be burdened with all the stuff. I don’t want my children to be burdened either.

I’m also sad about the changes at my beloved beach. The city has installed a gull repellent system. Every three minutes a recording of a gull in distress blares out from the loudspeakers. There are maybe two or three fearless gulls left on the roof of the beach house. All the laughing gulls are gone, all the different kinds of gulls are gone. I suppose I will never see my friend with the mangled foot again. It’s all too much for me to bear and I’ve been reduced to tears more than once this summer.

I visited my elm tree, Grandmother Elm. I cannot believe it’s been 5 years since I have gone! I used to visit all the time when Tim’s brother was living with us, the year he died here of cancer. Now she has small stems and branches growing out at the base of her trunk, covered with leaves. When I read The Hidden Life of Trees by Peter Wohlleben I believe he said this was a sign of distress. No other tree in the cemetery was like this. Perhaps she is suffering, too. Still, her wordless wisdom comforted me.

wood wide web

“Landscape with Stump” by Ivan Shishkin

But the most astonishing thing about trees is how social they are. The trees in a forest care for each other, sometimes even going so far as to nourish the stump of a felled tree for centuries after it was cut down by feeding it sugars and other nutrients, and so keeping it alive. Only some stumps are thus nourished. Perhaps they are the parents of the trees that make up the forest of today. A tree’s most important means of staying connected to other trees is a “wood wide web” of soil fungi that connects vegetation in an intimate network that allows the sharing of an enormous amount of information and goods. Scientific research aimed at understanding the astonishing abilities of this partnership between fungi and plant has only just begun.
~ Peter Wohlleben
(The Hidden Life of Trees: What They Feel, How They Communicate ~ Discoveries from a Secret World)

there is simply this moment, as it is

4.8.18 ~ Sandhills Horticultural Gardens, Pinehurst, North Carolina

Spirituality is life itself. Being life. Being this moment. Not as a practice or an attainment or something an imaginary person does in order to get somewhere else, but just because it’s What Is. It’s the natural state, the ever-present, ever-changing thusness of Here / Now. The part that falls away (if we’re lucky) is the search, the endless search to “get it,” to become “okay” at last… the belief in (and identity as) the psychological self and its problems and the endless attempts to cure them.As I see it, there is no end to awakening, no end to spiritual exploration and discovery, no end to devotion and celebration and wonder… but what can end (and only now) is the search to fix “me,” to unstick “me,” to enlighten “me,” to finally get control (by understanding how the universe works, by getting The Answer, by finally vanquishing all “my” neurotic quirks and tendencies and solving “my” problems). When all of that ends, there is simply this moment, as it is. Boundless and free.
~ Joan Tollifson
(Facebook, July 18, 2017)

persistently, abundantly, miraculously

1.22.18 ~ Cork, Ireland
Katherine has been taking good care of her beloved Purple Penguin ♡
photo by Larisa

One morning you might wake up
to realize that the knot in your stomach
had loosened itself and slipped away,
and that the pit of unfilled longing in your heart
had gradually, and without your really noticing,
been filled in — patched like a pothole, not quite
the same as it was, but good enough.

And in that moment it might occur to you
that your life, though not the way
you planned it, and maybe not even entirely
the way you wanted it, is nonetheless —
persistently, abundantly, miraculously —
exactly what it is.

~ Lynn Ungar
(The Way It Is)

After recovering from surgery and the bad cold I then had about a week of feeling good. I couldn’t wait to get back to my chores and even happily spent a morning giving the bathroom a thorough cleaning. It was fun to go food shopping with Tim, run errands together, cook a few meals, do some laundry, and enjoy a lovely long walk on the beach.

Then Wednesday I had my first radiation treatment and it went very well. But the predicted side effect of fatigue hit the next morning and I wound up sleeping most of the day. If that is the only side effect, though, I am grateful. I still feel sapped. Being a morning person usually full of vim, vigor and vitality, I woke up this morning wondering why on earth I felt so sluggish and it took me an hour or so to figure out that it must be lingering fatigue from the treatment. (And why was I looking for the eggs in the dishwasher?)

So Tim volunteered to do some food shopping today. And I am going to make a packing list!

Tim and the kids planned visits to fill the two week period between my 2nd and 3rd treatments! I will be getting my 2nd treatment (at Smilow Cancer Hospital in New Haven) on Wednesday and then going straight to Providence to catch a flight to Ireland to see Larisa & Dima and Katherine!!! And then the next week we will go to Georgia to see Nate & Shea!!! We will arrive home the night before my 3rd and final treatment.

I may be a tired blob but at least these trips will help pass the time and my radiation oncologist thinks they are a great idea. I do hope I get to see Blarney Castle and more of Cumberland Island National Seashore. But whatever happens it will be wonderful seeing the kids again. ♡